Events/News

March 2017

3/9/2017
TS Alliance Reception: An Update from the Washington University Tuberous Sclerosis Center!

Thursday, March 9, 6:00 – 8:00 p.m.
Third Degree Glass Factory
5200 Delmar Avenue
St. Louis, MO 63108
Join us for this exciting event as we highlight new advances in tuberous sclerosis complex and activities of the Washington University Tuberous Sclerosis Center and honor our special guest, Missouri State Treasurer Eric Schmitt. Guest speakers include Kari Luther Rosbeck, Dr. Michael Wong, and Eric Schmitt.
Hors d’oeuvres/light dinner will be provided. Please RSVP to Gwen Montaigne at Tawanda1951@yahoo.com.  .


February, 2017

2/1/2017
Washington University Tuberous Sclerosis Clinic Participating in Cannabidiol Clinical Drug Trial for Epilepsy in Tuberous Sclerosis Patients

The Washington University Tuberous Sclerosis Clinic is now enrolling patients in an industry sponsored randomized, double-blind, placebo-controlled drug trial testing cannabidiol for intractable seizures in tuberous sclerosis patients. For more information, please contact:
Olga Novak
 at 314-454-6120 or go to our clinical drug trial site.


September, 2016

9/10/2016
Step Forward to Cure TSC – St. Louis, MO

Join the TS Alliance of St. Louis and Southern Illinois for the annual Step Forward to Cure TSC to be held at Cliff Cave Park in St. Louis, MO at 1:30 pm on Saturday September 10. For more information, please contact:
Gwen Montaigne
at tawanda1951@yahoo.com.


July, 2016

7/31/2016
Missouri State Legislature Renews Funding for the Washington University Tuberous Sclerosis Center!

The Missouri State Legislature, led by Senator Eric Schmitt, dedicated $1.25 million in the 2016-2017 state budget, of which $250,000 has currently been released, for continued support and expansion of the comprehensive Washington University Tuberous Sclerosis Center.


May, 2016

5/18/2016
Washington University Tuberous Sclerosis Clinic to Start Seeing Adult Patients of all Ages

The Washington University Tuberous Sclerosis Clinic is pleased to announce the expansion of services for adults with TSC.  While previously the Clinic was limited to children and young adults up to age 21 years, the Clinic will now see TSC patients of all ages. The primary clinic, directed by Dr. Michael Wong, is based in St. Louis Children’s Hospital, where initial evaluation and screening occurs. Depending on the needs of each patient, referrals will then be made to a team of aligned TSC sub-specialists within Washington University, or ongoing consultation and collaboration of the TS Clinic can be established with the patient’s primary care doctor or other local specialists for long-term care.


November, 2015

11/10/2015
TS Alliance Reception Celebrating Missouri State Funding for the Washington University Tuberous Sclerosis Center!

Tuesday, November 10, 6:30 – 8:00 p.m.
Washington University
Farrell Learning & Teaching Center
Second Floor Atrium
520 S. Euclid Ave
St. Louis, MO 63110
Join us for this exciting event as we announce the new state-funded Washington University Tuberous Sclerosis Center. Guest speakers include Kari Luther Rosbeck, Dr. Michael Wong, and our honored guest, Missouri State Senator Eric Schmitt.
Hors d’oeuvres and refreshments will be provided. Please RSVP to John Wendling by Tuesday, November 3 at jwendling300@gmail.com.


October, 2015

10/24/2015
Town Hall Meeting – St. Louis, MO 

Join the TS Alliance of St. Louis and Southern Illinois from 1 to 3 pm for a Town Hall Meeting at Washington University in St. Louis. Dr. Michael Wong will present “Clinical Research and Infantile Spasms: A Community Call to Action.”
RSVP to John Wendling at jwendling300@gmail.com or
314-546-8627.

10/17/2015
Step Forward to Cure TSC – St. Louis, MO

Join the TS Alliance of St. Louis and Southern Illinois for the annual Step Forward to Cure TSC to be held at Cliff Cave Park in St. Louis, MO. If you would like to be involved in the planning and organizing or volunteer on walk day, please contact
Gwen Montaigne
at tawanda1951@yahoo.com.


July, 2015

7/25/2015
St. Louis Cardinal’s TSC Fundraiser

The Washington University Tuberous Sclerosis Center participated in the 6th Annual “Cure for Cauy” fundraiser, organized by Suzanne, Robert, and Cauy Clarke in conjunction with the St. Louis Cardinals and benefiting the Tuberous Sclerosis Alliance.  Over 60 physicians, nurses, and staff affiliated with the Washington University Tuberous Sclerosis Clinic and their families attended the fundraiser and watched the Cardinals beat the Atlanta Braves 1-0.

7/1/2015
TSC Funding from the Missouri Department of Mental Health

Missouri State Senators Eric Schmitt and Kurt Schaefer helped pass the state’s Department of Mental Health bill, including $250,000 toward the Washington University Tuberous Sclerosis Center to promote its three-fold mission of basic science research, clinical research, and comprehensive patient care for TSC.