Patient Care

The Washington University Tuberous Sclerosis Center team sees pediatric and adult patients at the Washington University Tuberous Sclerosis Clinic at St. Louis Children’s Hospital and affiliated sites. This is one of approximately 50 clinics in the U.S. dedicated specifically to the care of individuals with tuberous sclerosis complex (TSC).

The mission of the Tuberous Sclerosis Clinic is to provide multidisciplinary, comprehensive care of children and adults with TSC and to promote education and awareness about the disease.

Because TSC often affects multiple organs throughout the body, the clinic incorporates a multidisciplinary approach involving physicians, nurses, therapists, and other staff members from different Washington University specialty divisions, including cardiology, dermatology, genetics, nephrology, neuropsychology, neurosurgery, ophthalmology, psychiatry and urology.

Children are seen primarily at the TSC clinic and affiliated pediatric subspecialty clinics at St. Louis Children’s Hospital. Adult patients may initially be screened at the primary TSC clinic site at St. Louis Children’s Hospital, but then are referred to appropriate adult subspecialists at Barnes-Jewish Hospital and affiliated sites as needed.